I've been a little stressed lately.
Here's why:
At a recent cardiology appointment for Caleb he was discovered to be experiencing significant heart failure. I was completely put out. We have been told and have been hoping that the earliest time for second heart surgery would be three years. But if things don't improve a little by September, when our next appointment is, then we could be looking at going under sooner rather than later. Bummer.
Here are the details: As of February Caleb's mitral valve had a mild leak, which he's had since a couple months after heart surgery. Which was expected since the cardiologist always leaves a tiny leak (not even mild) rather than fixing the valve too tight (which can only be fixed by doing another surgery). If they leave a tiny leak they can fix that with medication.
So still expecting those results we had an echo cardiogram done and waited for the doctor to come in and tell me everything looked great and he'd see us in six months.
It's never good when the doctor comes in and says, "wow, I was a little surprised by the results, not expecting this". Because seriously, the little man child is a ball of unstoppable, curious, trouble making energy in the room.
But the results sucked. This mild leak had escalated to a scary leak, with moderate regurgitation of the blood going from the left ventricle into the right atrium, where it's not suppose to go. Plus his left atrium was twice the size of his right atrium because of the amount of back flow he's getting in there.
So Dr. Samson put Caleb on the lasiks (which is a diuretic) and asked to see us back in six weeks. Then he told me if the medicine has not changed anything then we should worry. Did he say that? Or did I add that in my head? I can't remember. But in my head he said that.
So now we wait.
On another note I haven't been feeling super great myself. I've been hypothyroid for six years now, which is always a not so fun battle. But this past year has been especially trying. Up and down with weight, emotions, energy and sanity. Plus I've had extreme high antibodies in the 500's for the past six months, when your antibodies should not be above 10.
So what do I do? I do a little google research.
And my self-diagnosis is Hashimotos.
Which is essentially your body attacking your thyroid and killing it, so your body is exhausted, the same way it would be if you were constantly fighting off a cold or flu.
Not so good.
So I went in to the doctor this week and told them my self diagnosis.
They agreed.
So now I'm moving onto an endocrinologist, where hopefully we can fix me.
My doctor did tell me that I would be a good candidate to have my thyroid radioactively killed, that way my body would stop fighting and my antibodies would go down.
Sounds scary.
So hopefully some answers come in September.
Caleb's cardiology appointment is on the 24th next month, and my endocrinology appointment is on the 28th next month.
4 comments:
I'm so sorry to hear about Caleb. That has to be so discouraging and stressful, which I'm sure isn't helping your health either. If it's any consolation, my sister-in-law had to have her thyroid radioactively killed. If I remember right, it was a pretty easy process. I know she did have to be isolated from all other people for a while until she wasn't radioactive any more, and that was the hardest part for her.
Not fun, Megs. Not fun at all. I miss you being here. I'm happy to come down on any of my days off to help when all this happens.
I will be praying for you! You guys amaze me! You are such a strong family and your attitudes are so positive! Hang in there.
I'm so sorry to hear that. How stressful for you! My brother has Hashimoto's and it is really hard. I hope the treatment they recommend will help you because the feeling drained all the time isn't good for ANY mom.
Post a Comment