Update

Proof that Amy takes awesome pictures, not that anyone needed any proof, but I love the ones she took of my boys when she came. More on these two later.

When we were in Iowa City we met with the Geneticist as well, that was on Wednesday. She spent a lot of time looking Caleb over. She measured his eyes, the space between his eyes, his ears, his head, his soft spot, his hands and fingers, his feet and toes, there was some crazy measuring going on. After her thorough evaluation she came up with a syndrome that she would most like to test for, it's called Goldenhar. Please don't Google it, it's kind of creepy. But it doesn't bother me so much if this is what's going on, because all of Caleb's symptoms and defects would be present now, and not show up in later years, and it has no effect on his physical or mental development. So he should be completely normal, except for the hearing loss, which isn't that big of a deal anymore (yeah!!).
This morning I got a call from the Iowa City hospital wanting me to come out and see the eye doctor because one of the defects is benign growths of the eye, so we have to go out in October. The lady on the phone told me the visit would be a minimum of two hours, not a big deal; I've been in waiting rooms for that long before!
I also saw Caleb's cardiologist on Friday, the one in town here, and he said that everything looks so well that we don't have to see him again until the beginning of November for him to check everything out before surgery. That was exciting because Caleb has never been that long without a cardiology appointment, two months, wow! (okay, I think it's closer to a month and a half)
And yesterday I went to our in-town audiologist to go over the results of Caleb's Iowa City testing from last week. She was very impressed and pleased. We have now readjusted his hearing aide and he's wearing it again. When she put it in he immediately responded. It was like night and day. All day yesterday, everything I said to him was just hilarious, he was in giggles all afternoon, it was so fun to see. He's still going to wear the headband as well; I'm just trying to come up with some inventive ways to remodel the band. I am not going to keep using the crusty Velcro tan thing he has, his hair always gets stuck in the Velcro. I'll come up with something, if anyone has any ideas, send them my way.

I need to document some completely random things my big boys have been saying lately. So the other day all five of us were driving in the car on our way home from the grocery store. (yes, we venture out quite often with ALL of the boys to buy groceries or wander Target for hours.)

Talin: Dad, who’s your favorite person in the whole world?

Tom: Mom.

Talin: (audible gasp and tsk) That wouldn’t be my favorite person.

Me: (LOUD gasping) What??!!

Tom: Who would be your favorite person then?

Talin: My favorite person in the whole world would be Jesus.

HA! Does this child ever cease to put us in our place? Who would your favorite person in the whole world be?

And then there's Collin who is a completely different personality from Talin. He came upstairs yesterday while I was getting ready.

Collin: Mom, I love you more than a google!
Me: Oh really, a google?
Collin: Yeah, I'll even love you when you're dead!
Me: You'll love me when I'm dead?
Collin: Uh huh, and I'll even love you when you're a grandma!
Me: Wow, you're so nice to love me even when I'm a grandma.

So funny. They certainly keep me entertained, but more importantly they keep Caleb entertained for me as well!