Maybe Caleb's fever the other night wasn't just because of the shots...
Friday night I started running a fever in the middle of the night, but come Saturday I felt better and didn't give it much thought because it was the big Super Saturday and I needed to be there to help out all day (new calling is Enrichment Leader!). By one in the afternoon I was done, so I went home and napped and woke up with a fever.
I'm such a baby; I lounged on the couch and moaned the afternoon away.
Just ask Tom, I literally moaned.
Sunday I missed teaching my first Relief Society lesson that I was so over prepared and psyched to teach (second new calling, R.S. teacher!). Then I stressed that my last minute sickness might be viewed as convenient since it was kind of like my coming out weekend in new callings. I seriously hope no on thought that.
But worst of all, now that I'm all chipper and back to fabulous, the nasty little bug has invaded Tom and he woke up this morning with a fever. Unfortunately for him he has no choice but to get up and go to class and clinic this afternoon. I feel terrible for him, he won't be able to lounge on the couch and moan his complaints the way I did.
The latest and greatest on Mr. Caleb:
Saw the G.I. Specialist, Dr. Sloven on Friday. He decided that Caleb needed to go onto a drip feed system. He's only getting approximately 21-24 ounces of milk a day, and he needs 30 ounces a day to grow normally, so he eventually wants to get him drinking 45 ounces a day to catch up to normal growth. Geez!!! The plan is to drip feed him for 21 hours a day. So he has a nifty backpack that we carry around and he's attached to for 21 hours. It carries the milk and the drip feed computer to calculate all the amounts that go into him, a cord comes out that carries the milk and hooks into his NG tube that goes into his nose.
It's all fine and dandy until you lay your child down at night and realize that he's sleeping with a three foot cord that ends taped to his face.
I had a panic attack.
Talk about a choking hazard!
After standing over the crib and contemplating the potential death cord and what to do, Tom and I taped the cord to his upper back, lower back, down to his bum and ended with the cord taped to his foot. So in the event of rolling around the crib throughout the night, he really only manages to wrap his feet up in it. Well that's the hope...fingers crossed.
Now the interesting news with all of this is that if his body keeps throwing up the milk and he can't tolerate more food, then we're going to do a reflux surgery, where we take his stomach and wrap it around the bottom of his esophagus. And while he does that, we'll put a button into his stomach, which is the g-tube. That would be the end of tape and nose tubes, but not the solution to an agonizing problem that doesn't seem to have an end.
In the end I'm just grateful for all the many doctors that are helping my little boy to get as healthy as he can.
6 comments:
I love the cute photo of Caleb below!
So sorry for the illness--moms, enrichment leaders, and teachers have a hard time being sick! All the best on your new callings (enrichment is what I do right now)!
OH my goodness. Poor Caleb what a trooper and as for you my HERO... Love you.
You are amazing you know. Hang in there. I'm looking for that feeding group I told you about. I know there were SEVERAL people who had the surgeries that Caleb might have for reflux (isn't it called a Nissen?) and the G-tube.
That is such a cute picture of Caleb! You guys are amazing! What a blessing for him to have such great parents.
I just joined the feeding group again. I need ideas on what to feed The Bub (Marshall). This is the website where you can join the group-
http://groups.yahoo.com/group/feeding/join
Poor guy. He has had more body invasiveness in 6 months than I've had in a lifetime (except the whole growing humans in my uterus thing, that is!).
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