Update

Caleb is doing well. We were released from the hospital Sunday afternoon, and sent home with instructions to bottle feed him with fortified breast milk every three hours, and then try to nurse afterwards, and then for me to pump after that to keep my breast milk up. It's quite a ridiculous routine I find myself repeating over and over several times a day.
People keep saying, "I don't know how you do it".
Well, me neither, it's frustrating but also worth it to sustain my little person. We go back to the doctor tomorrow to see how well I've been doing in getting him to grow. I'm not sure what happens if he's not doing well, another hospital stay? A feeding tube? Not sure, but at this point I don't care, whatever is best for Caleb. That seems to be my motto as of late. On a sour note, or a more sour note at least, my child being hospitalized has only managed to postpone my lovely talk giving in church. Yes, I'll be speaking this Sunday now. Not much of a reprieve. And I also had someone call me on Monday to teach relief society this Sunday. I politely declined.

And I think I'm going crazy. I didn't make my children lunch today and let them gorge themselves on movie theatre popcorn instead, and then bathing them this evening I found myself squirting out the entire bottle of bath foam over their heads. They were thoroughly amused, and I was just trying to rid myself of the bottles that have been in there since December rusting, yet never running out. It took a lot of spraying to empty just one bottle of foam, my fingers were sore afterwards.

And I finally did it. After being questioned by every nurse and doctor we saw over the weekend on whether or not I've had Caleb tested for genetic syndromes, I finally made the appointment to do so. I guess his heart and ear problems are very common in genetic disorders. So I busted up the courage to make the phone call and set the appointment. I guess I shouldn't have been so worried about doing it, I don't have to take him to the appointment until December 10th. Yeah, that's how long the wait is, how crazy is that?